About

Four people, two organizations

The Coalition has no staff and no payroll of its own. It is coordinated by the executive directors of its two member organizations — which is what “operated jointly” means in practice.

Two of these four run the organizations that operate the Coalition. A third works the Capitol year round. The fourth is a parent.

Melissa Compton

Co-Coordinator

Executive Director, Lone Star Bleeding Disorders Foundation

Julie Fredericksen Jones

Co-Coordinator

Executive Director, Texas Central Bleeding Disorders

Cheri Huddleston

Legislative Consultant

Legislative and public affairs

Shelley Clawson

Chair

Parent of a son with hemophilia

Why there is no separate board

The Coalition is not its own organization, so it has no board of its own. Governance sits with the boards of Texas Central Bleeding Disorders and Lone Star Bleeding Disorders Foundation, which operate the Coalition jointly.

That is also why nobody here is paid by the Coalition: there is nothing to be paid by.