Our mission
Ensure patients with bleeding disorders have access to care at Hemophilia Treatment Centers, access to the full range of FDA clotting factor medications, and access to the full range of specialty pharmacy providers.
Our Beginnings
In 2012, the Lone Star Chapter of the National Hemophilia Foundation and the Texas Central Hemophilia Association spearheaded an effort to bring together community leaders to establish a state-wide advocacy group. The Texas Bleeding Disorders Coalition. These key stakeholders encompassed representation from both chapters, a Hemophilia Treatment Center representative and representatives from both NHF and HFA. In 2013, the Texas Bleeding Disorders Coalition was launched to connect advocates across the state to collectively work on issues throughout the year capitalizing on our strength in numbers and our passion to serve the bleeding disorders community. We are united and dedicated to our centralized priorities: ensuring that all consumers have access to high quality medical care at Hemophilia Treatment Centers, access to all clotting medications and access to the ancillary services, support and education needed by our community.
Today, the Texas Bleeding Disorders Coalition has developed into one of NHF's 5 Advocacy Centers in the United States and is recognized for both leadership and grass roots efforts. We continue to work on legislation from a state and national perspective in support of our community. Additionally, we have developed strong relationships with state agencies and payers to continue to positively influence the changing healthcare landscape.
Our Priorities
The Texas Bleeding Disorders Advocacy Coalition works to ensure that every person affected by a bleeding disorder can access the life-saving care they need. Its priorities focus on protecting patient choice and removing barriers so individuals and their providers can make the best medical decisions for their care. To ensure all patients have access to life-saving treatments, the Coalition advocates for full access to all treatment products, allowing providers and patients to select the therapies that best meet individual needs. It also works to close long-standing gaps in care by promoting timely diagnosis and appropriate treatment for women with bleeding disorders, who are too often overlooked or misdiagnosed. Recognizing that bleeding disorders affect more than physical health, the Coalition also supports improved access to mental health resources so patients and families receive the emotional support they need alongside their medical care.